results in progressive muscle deterioration and is fatal by late teens/early twenties. He died in March of 2013. In December 2013, as part of their healing journey, Mitchell's family returned to the hospital where he was cared for (in Utah) to give quilts to children there. This Christmas, they plan to return and these quilts will help them to continue healing through serving. Thank you to all who sent one of these beautiful quilts. I am sure they will be a wonderful gift to 12 amazing children.